Judith Heumann: Championing Disability Rights and Inclusive Advocacy
In our Icon Series, we reflect upon individuals who have laid the foundation for our journey toward justice and equity. The New Hampshire Center for Justice & Equity celebrates the extraordinary life of Judith Heumann.
About Judith Heumann
Judith “Judy” Heumann is a pioneering disability rights activist whose lifelong dedication to advocating for people with disabilities has transformed the landscape of accessibility and inclusivity. Born on December 18th, 1947, in Philadelphia to German Jewish immigrants, Heumann's experiences shaped her determination to fight for the rights and dignity of individuals with disabilities. Throughout her career, she was instrumental in advancing disability rights both nationally and internationally. In this article, we delve into the life and enduring legacy of Judith Heumann, the “mother” of the Disability Rights Movement.
Early Life and Discrimination
At 18 months old, while living in Brooklyn, New York, where she grew up, Judith Heumann was diagnosed with polio, which resulted in her being a wheelchair user for most of her life. Her personal experiences with discrimination and barriers to access fueled her passion for activism and advocacy. At the age of five, Heumann was denied the right to attend the local public school. Because she used a wheelchair, she was considered a fire hazard. Her mother’s incessant community activism ensured that a homeschooled Judith Heumann was able to attend high school in 1961.
Her early activism began during her college years at Long Island University when she fought for accessible housing and classrooms for people with disabilities. After completing her studies, 22-year-old Judith Heumann was denied a teaching license despite having passed her oral and written tests, as she failed the medical exam for not being able to walk. She sued the New York Board of Education for discrimination against her physical disability and later became the first wheelchair user to teach in the state of New York.
Driving Legislative Change and International Advocacy
In 1970, Heumann and several friends founded Disabled in Action (DIA), an organization that sought the legal protection of people with disabilities through political protest. Before the Rehabilitation Act of 1973 was signed by President Nixon in September 1973, DIA led by Heumann held a sit-in in New York City blocking traffic on Madison Avenue to protest vetoes to the legislative text.
“Disability only becomes a tragedy when society fails to provide the things we need to lead our lives.”
In 1977, Heumann played a pivotal role in the groundbreaking 504 Sit-In, a historic 26-day protest in San Francisco that led to the signing of Section 504 of the Rehabilitation Act of 1973. This legislation was a landmark achievement in the fight for disability rights, as it prohibited discrimination against people with disabilities in accessing programs receiving federal funding. Heumann's leadership during the sit-in catapulted her into national prominence as a leading voice for disability rights.
Heumann was also a prominent figure in the development and implementation of the Americans with Disabilities Act (ADA) in 1990, which remains one of the most comprehensive pieces of civil rights legislation for individuals with disabilities. The ADA has been instrumental in ensuring equal opportunities and access for people with disabilities in various aspects of public life, including employment, transportation, and public accommodations.
Heumann's advocacy also extended to the global stage. She served as the Special Advisor for International Disability Rights at the U.S. Department of State, where she advocated for the inclusion of disability rights in international policies and programs. Her efforts led to the adoption of the United Nations Convention on the Rights of Persons with Disabilities in 2006, a groundbreaking treaty that promotes the rights and full participation of people with disabilities in all aspects of society.
Promoting Inclusive Education and Employment
From 1993 to 2001, Heumann served as the Assistant Secretary for the Office of Special Education and Rehabilitative Services in the Department of Education, during the Clinton Administration. Her advocacy for inclusive education and employment opportunities emphasized the importance of creating accessible learning environments and fostering inclusive practices that allow individuals with disabilities to thrive in educational settings.
Furthermore, Heumann has championed the inclusion of people with disabilities in the workforce, advocating for equal employment opportunities and workplace accommodations. She was a founding member of the Center for Independent Living, which spearheaded the Independent Living Movement, serving over 8 million youth and adults with disabilities with national-level programs in special education, disability, research, rehabilitation, and independent living. Heumann also co-founded the World Institute on Disability (WID), one of the first global disability rights organizations founded and led by people with disabilities, advocating for community integration through research, policy, and advisory.
From 2002 to 2006, Heumann was the World Bank’s first Advisor on Disability and Development, helping the global organization push for the inclusion of people with disabilities. In 2010, during the Obama Administration, Heumann served as the first Special Advisor for International Disability Rights.
Legacy and Continuing Impact
Heumann's work has inspired generations of activists and advocates to continue the fight for equal rights and opportunities for people with disabilities. She has been featured in several documentaries about the history of the disability rights movement, including “Crip Camp: A Disability Revolution”, “Lives Worth Living” and “The Power of 504.” Her 2020 memoir “Being Heumann”, co-written with Kristen Joiner, is set to be adapted into a movie.
Judith Heumann’s lifelong commitment to disability rights helped pave the way for greater workplace inclusivity and has highlighted the importance of fostering a diverse and inclusive workforce that values the contributions of individuals with disabilities. Her legacy is one of resilience, determination, and dedication to advancing the rights and inclusion of people with disabilities. Judith Heumann's enduring legacy serves as a reminder of the transformative power of advocacy and the need for continued efforts to build a more inclusive and equitable world for all.
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Learn More About Judith Heumann
judithheumann.com - Judith Heumann’s Website
